1. Ben is skinny. We get it. Once in the 50th percentile, he's now below the first. We tried plumping him up by keeping extremely detailed lists of every food that entered his little body and then played around with percentages. 50% fat and 1200 calories a day resulted in no weight gain and loads of diarrhea. So then we lowered the fat and raised the protein and that helped the diapers but not the weight. We were elated to discover he'd gained 4/10ths of a pound only to watch the scale plummet right back down a few days later. We're still keeping the detailed list of foods along with pictures of his face and butt (nice, huh?) to give the naturopath or allergist or nutritionist or whatever specialist we eventually decide on. But as for weight gain? I give up.
2. Ben is rashy. We get that, too. His rashes wax and wane, and they are most definitely much improved from the horrific-ness of weeks past. But they're still there and I just don't know why.
3. I kept him off all foods except the least allergenic for 15 or 16 days. Things got better. Then I gave him a banana. Whoa, dog. Insta-rash. Then days later, sweet potatoes. Whoa, diggity dog. Insta-rash/diarrhea. Then days later, milk. WHOA hot diggity dog. The worst of all reactions by far. He can't truly be allergic to everything, right?
4. I think Ben has Acrodermatitis Enteropathica (a fancy word for a zinc deficiency), brought on by undiagnosed food allergies. I think his is the acquired version rather than the inherited. I'm not doctor, but the puzzle pieces fit. The problem? We already know his zinc levels are scary-low and he's already on a supplement. If he STILL has low zinc levels, it's because we're still exposing him to allergens we don't even know about. This is never-ending.
I just want to change his diaper without watching him scream in pain because his butt is so raw that he can't even sit down. I just want him to be pain-free. I love my little snuggle butt more than words.



